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They do not claim it will cure him. The site clearly states that since there are so few cases there are just experiments thus far to see if it is possible to stop the brain degeneration.
According to the report, the operation would be only a bone marrow transplant along with several other tests and treatment for about 4 months, which are typical in the treatment to try and stop the disease somewhat. And this can only be done in the US and France. It is ridiculously expensive just to see if Nicolas is apt and of course, financing is out of the question since the kid isn't American.
That you're very cynical doesn't make everyone liars. They weren't on some morning talkshow weeping. They were on the most respected news show where I had never seen any other weepy story mentioned.
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